Below you will find research conducted by C-TAC and our partners to inform advocates working in advanced illness care.

- PCORI Roundtable Discussions -

C-TAC was honored to receive the Eugene Washington PCORI Engagement Award for Capacity Building from the Patient-Centered Outcomes Research Institute (PCORI). We are using this support to develop regional leadership forums that tackle issues in advanced illness care.

C-TAC has worked with community partners to host a series of regional leadership forums in major cities around the United States, reaching patient and consumer advocates, health system leaders, faith leaders, and other key influencers who are working to improve advanced care.

- SIP Framework -

- August 2017 -

C-TAC has collaborated with Healthsperien, the Betty Irene Moore School of Nursing at UC Davis, and the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School, with support from the Gordon and Betty Moore Foundation, to incrementally develop a flexible Serious Illness Program Design and Implementation Framework (SIP Framework) consisting of the foundational elements of program design that contribute to program success.

Cigna Caregiver Research 

- June 2017 -

In June 2017, C-TAC released consumer data on family caregivers that paints a bleak picture of the state of caregiving in America. We will be developing tools that will provide meaningful impact for loved ones caring for people with advanced illness. Our goal is for family caregivers to be assured of the importance of their work and know that resources are available to them.


Institute of Medicine 

- September 2014 -

The report by the Institute of Medicine, Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life, marks a critical milestone in the evolution of how we care for the sickest and most vulnerable people in this country.

C-TAC Consumer Perceptions Paper

February 2014 -

Go in-depth with C-TAC to better understand one of the biggest barriers we face. Public Perceptions of Advanced Illness Care: How Can We Talk When There’s No Shared Language explores communication gap between patients, families and the healthcare providers they rely on when they are sickest and most vulnerable.

Implementing Decision Making Resources for Serious Illness

- January 2014 -

Go in-depth with C-TAC and Advisory Board to better understand resources available to increase shared decision making. Implementing Decision Making Resources for Serious Illness explores best practices for incorporating end-of-life decision aids into health care provider settings.