C-TAC Policy Forum 2021

The C-TAC Policy Forum offers changemakers an insider-view of federal serious illness care policies that they can leverage to drive change in their communities. By holding the event virtually and free of charge, C-TAC draws diverse attendees across industries with a wealth of insight into the issues facing people with serious illness. C-TAC hosts the Policy Forum, not only to serve as a progress report on the state of serious illness care policy, but to be a proving ground where new ideas are shared and commitments are made by leaders to improve the care and support of those with serious illness in communities across the country.

The sessions below will each be 45 minutes long, held consecutively, with a one-hour break halfway through the event. Stay tuned for speaker and session updates closer to the event!

Note: When registering for this event, please use one of the following Internet browsers: Google Chrome or Firefox. Older browsers, such as Internet Explorer, are no longer compatible with the registration system.

Event Agenda

12:00 - 12:15 PM ET

Plenary | Vision for Our Collective Work

Our opening plenary features Jon Broyles, C-TAC’s Executive Director and Dr. Meena Seshamani, MD, a C-TAC board member to set the goals for this Forum They will be followed by a concise and compelling view of why C-TAC was formed, the issues that will be the focus of today’s dynamic panel discussions (Payment Reform, Health Equity, Advance Care Planning and Workforce) and comments from US Senator Sheldon Whitehouse (D-RI) and Ms. Courtnie Moody Health Policy Chair for the American Medical Students Association.

12:15 - 1:00 PM ET

How to Leverage Federal Policy to Advance Home- and Community-Based Care Models

The COVID-19 pandemic has shed light on a variety of existing issues within our healthcare system. As advocates for those facing serious illness, it is essential that we identify these challenges and ensure that future care models support this vulnerable population. During this panel, experts will discuss what future care models would look like and explore the policy changes needed to bring this vision to life.


Ravi Parikh, MD, MPP, FACP, Senior Clinical Advisor and Board Member, C-TAC (Host)

Anne Tumlinson Circle

Anne Tumlinson, CEO, ATI Advisory

Mona Siddiqui Circle

Mona Siddiqui, MD, MPH, MSE
Senior Vice President, Clinical Strategy and Quality, Enterprise Clinical Management, Humana

1:00 - 1:10 PM ET


1:10 - 1:55 PM ET

How Data and Policy Can Drive Access for Underserved Populations

Our field is still grappling with long-standing racial disparities in health care. During this session, speakers uniquely situated at the intersection of policy and practice will discuss the importance of collecting and using the right data. They will also explain how we can use policy levers to boost access to care for the most underserved populations with serious illness. Their recommendations will help us advocate for equitable care that improves the lives of people with serious illness, in keeping with the 2030 Moonshot goal.

Marisette Hasan Circle

Marisette Hasan, BSN, RN, President/CEO, The Carolinas Center (Host)

Darci Graves Circle 2

Darci L. Graves, MPP, MA, MA, Office of Minority Health, Centers for Medicare & Medicaid Services (CMS)

Debra Flores Circle

Debra A. Flores, FACHE, Senior Vice President Area Manager, Kaiser Permanente

1:55 - 3:00 PM ET


Our agenda includes a one-hour break after our second session, allowing time for attendees to connect with one another via the Engagez platform or complete other tasks. Please note that we will reconvene for our third session at 3 PM ET.

3:00 - 3:15 PM ET

Plenary | The Patient Voice & Hill Champions

The second plenary session will feature a compelling interview that highlights the centrality of the patient experience led by Dr. Michael Fratkin, MD, Founder and CEO of ResolutionHealth with Connie, one of the his patients. With keen observations and commitments, this session will include insights from two US Senators – Jacky Rosen (D-NV) and Mark Warner (D-VA) as well as US Congressman Earl Blumenauer (D-OR) and an Albert Scheizer Fellow from the University of Tulsa, C-TAC Policy Intern Ms. Joanna George.

3:15 - 4:00 PM ET

How Federal and State Policies and Innovations are Reshaping the Advance Care Planning Landscape

Advance care planning (ACP) is more important than ever as we continue to address the COVID-19 pandemic. It has also become more challenging, with families often separated from their loved one with serious illness due to visitation restrictions. During this session, experts will explore specific legislative and regulatory policies that can boost access to and quality of ACP services for those most at risk among us. Speakers will also discuss a recent survey that examines ACP through an equity lens.

Stephanie Anderson Circle

Stephanie Anderson, DNP, RN, Executive Director, Respecting Choices (Host)

Nina Kohn

Nina Kohn, David M. Levy Professor of Law, Faculty Director of Online Education and Professor, Syracuse University; Solomon Center Distinguished Scholar in Elder Law, Yale Law School


Anna Gosline, Executive Director, Massachusetts Coalition for Serious Illness Care

4:00 - 4:10 PM ET


4:10 - 4:55 PM ET

How Advocacy Can Strengthen the Serious Illness Care Workforce

We cannot support people with serious illness and their families without strengthening the direct care workforce. Such care workers have served tirelessly on the frontlines of the COVID-19 pandemic and play a particularly important role in the lives of those with serious illness, who are especially vulnerable to the virus and often unable to leave their homes. This session will review potential federal policies affecting the direct care workforce. Speakers will also discuss their own program experience with this workforce and what policy changes could support their work.

Marian Circle

Marian Grant, DNP, ACNP-BC, ACHPN, FPCN, RN, Senior Regulatory Advisor, C-TAC

Manali Patel Circle

Manali Patel, MD, MPH, MS, Assistant Professor of Oncology, Stanford Department of Medicine

Sarah Slocum Circle

Sarah Slocum, Deputy Director, Center for Eldercare Improvement, ALTARUM

4:55 - 5:00 PM ET


We will thank our speakers and attendees for taking part in C-TAC Policy Forum 2021, directing participants to resources and tools they can use to continue to drive policy change in their communities.

Stay tuned for updates on our Policy Forum program as we come closer to the event!