Policy & Advocacy

C-TAC pursues a comprehensive policy agenda to help guide advocacy initiatives, including delivery system reform, preference-driven care, caregiver and consumer support, and professional engagement.

We will continue to pursue legislative and regulatory strategies on the federal and state level with C-TAC members to ensure that those living with advanced illness have access to high-quality, person- and family-centered care.

2021 Policy Priorities

On January 15, 2021, C-TAC sent a letter to President Joe Biden's transition team that detailed the major policy issues facing those with serious illness and their families. In the letter, C-TAC Executive Director Jon Broyles explained that there are two overarching immediate issues which must be considered when developing policies that affect those with serious illness:

COVID-19 Pandemic

The ongoing COVID-19 pandemic has exacerbated problems facing those with serious illness and changed the way that our health care system delivers services. In order to address these needs, C-TAC encourages the Biden Administration to prioritize providers of home-and-community-based medical and social care for the distribution of vaccines, personal protective equipment and testing materials. C-TAC also urges the Administration to ensure that family members and caregivers can have safe in-person visits with their seriously-ill loved ones. Lastly, it is important to remove coverage and access barriers to Medicare advance care planning.

We have also called on the Biden-Harris Administration to explicitly address ongoing visitation challenges for people with serious illness as part of their national COVID-19 response strategy.

In a letter to the administration and an Op-ed published by Modern Healthcare, we highlighted the emotional toll that comes with this isolation. In-person visitation restrictions make it more challenging for families to advocate for their loved ones and discuss their goals of care. Leaders must give healthcare organizations the guidance needed to do right by patients, families and front-line workers.

Health Care Equity

The pandemic has shed light on long-standing racial inequities in our health care system. Addressing these issues and dismantling systemic barriers to high-quality care is at the center of our policy agenda. The Biden Administration can support this effort by removing financial obstacles to quality serious illness care, improve access to preventive care and chronic care management, boost diversity among caregivers of all kinds and allow people to play a larger role in designing the health and social care infrastructure in their own communities.

Working with our Equity Taskforce, C-TAC is developing a robust policy agenda that ensures the sickest and most vulnerable among us receive the care they need. Click on the boxes below to learn more about each of our key areas of focus in 2021.

Watch Our Latest Policy Update

"The Impact of the 2020 Election on Federal Serious Illness Care Policy"

Recorded on Dec. 9, 2020, this discussion features insight from C-TAC's policy experts on the 2020 election and what it means for the future of serious illness care policy at the federal level. The slides used during the event are available here. Answers to questions we did not have time to cover during the webinar are available here.