State and Community Organizing
The work of transforming advanced care happens on the ground by way of people interacting with their clinicians, local health providers, and community institutions. Such work cannot happen solely in Washington, DC. The Campaign will support state and community coalitions to deliver on-the-ground support and provide them with a framework for how to organize. We are focusing this work around state advocacy, increasing advance care planning, reaching new and underserved communities, and implementing our advanced care model in health systems.
Coalition Case Studies
As a part of our state and community support efforts, we released a case study of the Massachusetts Coalition for Serious Illness Care that looks at how it structured itself, what it means to be a member, and how it evaluates progress.
Community Action Project
The faith-based community presents an important opportunity for C-TAC to pursue our goal of providing people with advanced illness with the right care at the right time and place.
- Clergy want and need training and information to help their congregants deal with advanced illness and its many challenges.
- Community organizations (faith-based and others) are a resource for helping patients get the care they need. They address underserved populations, and often develop effective solutions to critical unmet needs.
- Many local health systems have advanced illness management programs for their communities, but few ways to interact with hard-to-reach populations.
The Community Action Project brings together health systems and community based organizations to improve advanced illness care.
The Project’s objectives are to:
- Foster a partnership between health systems and community organizations to fill critical gaps in care delivery;
- Give each partner tools and knowledge to help patients ask for and receive the care they want and need; and,
- Help health systems deliver existing advanced illness management programs to underserved patients and families.
The Project has four key elements:
- A community-specific needs assessment
- A convening of patients and caregivers, community organizations, and health systems
- Necessary technical assistance (e.g., strategic plan, communications, education on advanced illness)
- A resource sharing tool to facilitate the dissemination of best practices from our member organizations
As part of the Community Action Project, C-TAC released a blueprint for how faith leaders can develop stronger partnerships with community stakeholder and change how we deliver care for people with advanced illness. The blueprint outlines information for developing sustainable partnerships between the faith community and healthcare stakeholders.