End Notes

1 Coalition to Transform Advanced Care. “About C-TAC”. Coalition to Transform Advanced Care. Accessed October 30, 2018. https://www.thectac.org/about

2 CTSA Community Engagement Key Function Committee Task Force on the Principles of Community Engagement. Principles of Community Engagement Second Edition (Washington, DC: National Institutes of Health Publishing, 2011)

3 Jeff Edmonson. “The difference between collaborative and collective impact” last modified November 12, 2012. https://www.strivetogether.org/library/category/collective-impact/

4 John Kania, et al. “Collective Impact”. Stanford Social Innovation Review: Informing and Inspiring Leaders of Social Change 9, no. 1 (2011): 36-41, URL: https://ssir.org/articles/entry/collective_impact

5 Marshall Ganz. (2018). Harvard Kennedy School Faculty: Marshall Ganz last updated August 17, 2018. https://www.hks.harvard.edu/faculty/marshall-ganz

6 Cintia Mirnda. “How to Craft a Unique Value Proposition for your Non-profit Organization” Accessed August 26, 2019. https://pulsemarketingagency.com/how-to-craft-a-unique-value-proposition-for-your-non-profit-organization/

6 Harvard Kennedy School Educational Programs. Leadership, Organizing and Action: Curriculum last updated October 30, 2018. https://www.hks.harvard.edu/educational-programs/executive-education/leadership-organizing-and-action/curriculum

7Respecting Choices. Respecting Choices: Person-Centered-Care. accessed October 30, 2018. https://www.respectingchoices.org

8 Respecting Choices. Respecting Choices: Person-Centered-Care. accessed October 30, 2018. https://www.respectingchoices.org

9 ibid

10 The Conversation Project & Institute for Healthcare Improvement. Your Conversation Starter Kit: When it comes to end-of-life care, talking matters last updated 2017. http://theconversationproject.org/wp-content/uploads/2017/02/ConversationProject-ConvoStarterKit-English.pdf

11 The Conversation Project & Institute for Healthcare Improvement. Getting Started Guide for Communities last updated 2015. http://theconversationproject.org/wp-content/uploads/2015/05/TCP_Community_FINAL1.pdf

12  Organizing for Action. What is a Snowflake? last updated 2013. https://my.ofa.us/page/content/snowflake/

13Adventure Associates Incorporated Staff. “Distributed Leadership: The Definition and Theory Behind This New Leadership Approach” posted July 30, 2015. https://www.adventureassoc.com/distributed-leadership-the-definition-and-theory-behind-this-new-leadership-approach/

14 The Conversation Project & Institute for Healthcare Improvement. Getting Started Guide for Communities last updated 2015. http://theconversationproject.org/wp-content/uploads/2015/05/TCP_Community_FINAL1.pdf

15 Weiss, Carol H. Evaluation Research: Methods for Assessing Program Effectiveness. Englewood Cliffs, NJ: Prentice Hall Publishers, 1972

16 Salesforce UK. “What is Customer Journey Mapping & Why is it Important?”. Salesforce Blog, March 23, 2016. https://www.salesforce.com/uk/blog/2016/03/customer-journey-mapping-explained.html

17 Beckers Hospital Review. “Patient Navigators Play Key Role in Improving Quality, Lowering Costs, Clinical Leadership & Infection Control, January 03, 2013. https://www.beckershospitalreview.com/quality/patient-navigators-play-key-role-in-improving-quality-lowering-costs.html

18 Pilcher, Jeff. “Say It Again: Messages Are More Effective When Repeated” The Financial Brand Blog,  https://thefinancialbrand.com/42323/advertising-marketing-messages-effective-frequency

19 Spredfast (2018). Social Media Demographics. Spredfast. Retrieved from:  https://www.spredfast.com/social-media-tips/social-media-demographics-current

20 ibid

21 ibid

22 ibid

23 ibid

24 Arizona End of Life Care Partnership. “Arizona End of Life Care Partnership Homepage” last updated in 2018. https://www.azendoflifecare.org

25 Arizona End of Life Care Partnership. “Arizona End of Life Care Partnership Homepage” last updated in 2018. https://www.azendoflifecare.org

26 Massachusetts Coalition for Serious Illness Care. “Massachusetts Survey on Advance Care Planning & End of Life Care” last updated 2016. http://maseriouscare.org/research/massachusetts-survey-on-advance-care-planning-and-end-of-life-care

27 Massachusetts Coalition for Serious Illness Care. “Massachusetts Coalition for Serious Illness Care Homepage” last updated 2016. http://maseriouscare.org

28 [@MASeriousCare]. “Massachusetts Coalition for Serious Illness Care Twitter Page” last updated October 30, 2018. https://twitter.com/maseriouscare

29 Arizona End of Life Care Partnership. “Arizona End of Life Care Partnership Homepage” last updated in 2018. https://www.azendoflifecare.org

30 What Matters: Caring Conversations About End of Life. “Marlene Myerson JCC Homepage”

last updated in 2018. https://www.jccmanhattan.org/jewish-living/advance-care-planning/

31 Honoring Choices Pacific Northwest. “Honoring Choices Pacific Northwest Homepage” last updated in 2015. http://www.honoringchoicespnw.org/about/purpose/

32 Arizona End of Life Care Partnership. “Arizona End of Life Care Partnership Homepage” last updated in 2018. https://www.azendoflifecare.org

33 Massachusetts Coalition for Serious Illness Care. “Massachusetts Coalition for Serious Illness Care Homepage” last updated 2016. http://maseriouscare.org

Downloadable Supplementary Materials
  • To download the full Community Engagement Toolkit Companion Guide as a Word document, please click here.