The Blog to Transform Advanced Care
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Everyday thousands of children are born with some sort of life-limiting disease that alters the course of their life dramatically. Doctors’ appointments, surgeries, at home care around the clock; it can all become overwhelming on the child and the other family members.
For 11 years now, Phoenix-based nonprofit Ryan House embraces all children and their families as they navigate life-limiting or end of life journeys. The Ryan House care team focuses on quality of life and continuity of care and provides palliative and respite care that addresses the emotional, spiritual and social needs of the whole family.
Ryan House is a safe and joyful place where kids can be kids and families can be families. During short respite stays of up to 28 days per year, the organization provides everyday childhood experiences, including swimming and sleepovers, to children whose medical conditions make many of these experiences difficult. These experiences are aimed at empowering children to live their best life.
Ryan House’s 12,500 sq. foot facility has eight creatively themed cabins (bedrooms) for children. Families are always welcome to stay in one of three family suites. Kids, families, volunteers and staff have fun in the great room, the S’mores Café family kitchen and dining room, and a colorful and fun wheelchair-friendly playground. Specialized therapies are housed in the Swimming Hole (indoor hydrotherapy pool), Sensory Tent, Creative U, Do’Re’Mi’ Music Room, and the Story of Me multi-media legacy-building room.
The Sanctuary and memorial garden provide quiet, peaceful spaces for reflection, remembrance and celebrations of life, because life is not determined by length, but by how many happy moments we spend with those we love.
Ryan House is more than just a facility; it is an innovative concept in Pediatric Palliative Care. It is a community and a home. The world class care and services provided at no cost to families are made possible by the generous donations and support from the community.
As one of only three facilities of its kind in the nation and the only organization of its kind in the Southwest, Ryan House is leading the way for a new model of care in pediatric palliative care.
“As a leader in this model of care, we have joined C-TAC, and are excited to participate in the national conversations regarding pediatric palliative care,” said Ryan House Executive Director Tracy Leonard-Warner.
For more information visit RyanHouse.org or call (602) 200-0767.